Addressing psychosocial vulnerability in rare diseases : a call to action from a European expert consensus study

Smits, Rosanne M.; Aerts, Aukje; Angelov, Teodor; Bentele, Marissa; de Blaauw, Ivo; Dellenmark-Blom, Michaela; Duijts, Saskia F. A.; Fjermestad, Krister; Franscini, Monica; Grano, Caterina; Hendriks, Sigrid; Inhestern, Laura; Kenny, Thomas; von der Lippe, Charlotte; Oomen, Loes; Rake, Jan Peter; Rietman, Andre B.; van Rooij, Iris A. L. M.; Verhaak, Chris M.; Voet, Nicoline B. M.; Walton, Holly; van Zelst-Stams, Wendy; Kwakkenbos, Linda

Addressing psychosocial vulnerability in rare diseases : a call to action from a European expert consensus study

Autor(en):

Smits, Rosanne M.; Aerts, Aukje; Angelov, Teodor; Bentele, Marissa; de Blaauw, Ivo; Dellenmark-Blom, Michaela; Duijts, Saskia F. A.; Fjermestad, Krister; Franscini, Monica; Grano, Caterina; Hendriks, Sigrid; Inhestern, Laura; Kenny, Thomas; von der Lippe, Charlotte; Oomen, Loes; Rake, Jan Peter; Rietman, Andre B.; van Rooij, Iris A. L. M.; Verhaak, Chris M.; Voet, Nicoline B. M.; Walton, Holly; van Zelst-Stams, Wendy; Kwakkenbos, Linda

Tübinger Autor(en):

Bentele, Marissa

Erschienen in:

Orphanet Journal of Rare Diseases (2025), Bd. 20, H. 1Article Number 543

Verlagsangabe:

London : Bmc

Sprache:

Englisch

Referenz zum Volltext:

http://dx.doi.org/10.1186/s13023-025-04017-3

ISSN:

1750-1172