Secondary use of patient data within decentralized studies using the example of rare diseases in Germany: A data scientist's exploration of process and lessons learned

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Secondary use of patient data within decentralized studies using the example of rare diseases in Germany: A data scientist's exploration of process and lessons learned

Author: Zoch, Michele; Gierschner, Christian; Andreeff, Anne-Katrin; Henke, Elisa; Sedlmayr, Martin; Mueller, Gabriele; Tippmann, Jenny; Hebestreit, Helge; Choukair, Daniela; Hoffmann, Georg F.; Fritz-Kebede, Fleur; Toepfner, Nicole; Berner, Reinhard; Biergans, Stephanie; Verbuecheln, Raphael; Schaaf, Jannik; Fleck, Julia; Wirth, Felix Nikolaus; Schepers, Josef; Prasser, Fabian
Tübinger Autor(en):
Biergans, Stephanie
Verbücheln, Raphael
Published in: Digital Health (2024), Bd. 10, Article 2,05520762412652E+16
Verlagsangabe: London : Sage Publications Ltd
Language: English
Full text: http://dx.doi.org/10.1177/20552076241265219
ISSN: 2055-2076
DDC Classifikation: 004 - Data processing and computer science
300 - Social sciences, sociology and anthropology
610 - Medicine and health
Dokumentart: Article
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