Framework for Multistakeholder Patient Registries in the Field of Rare Diseases

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Framework for Multistakeholder Patient Registries in the Field of Rare Diseases

Author: Schoenmakers, Daphne H.; van den Berg, Sibren; Timmers, Lonneke; Adang, Laura A.; Baumer, Tobias; Bosch, Annet; van de Casteele, Marc; Datema, Mareen R.; Dekker, Hanka; Donnelly, Conan; Driessens, Mariette H. E.; Graessner, Holm; Greger, Valerie; Haddad, Tala; Hoglinger, Gunter U.; van den Hout, Hannerieke; Jonker, Carla; Langeveld, Mirjam; Lambert, Laurie J.; Neacy, Eileen; Nieuwland, Marc; Klockgether, Thomas; van der Knaap, Marjo S.; Papadopoulou, Andri; Plueschke, Kelly; van Rijn, Sanne; Rosenberg, Noa; Saunier-Vivar, Elise F.; Vieira, Bruna dos Santos; Hollak, Carla E. M.; Goettsch, Wim G.; Wolf, Nicole I.
Tübinger Autor(en):
Graessner, Holm
Published in: Neurology (2024), Bd. 103 (6), Article e209743
Verlagsangabe: Philadelphia : Lippincott Williams & Wilkins
Language: English
Full text: http://dx.doi.org/10.1212/WNL.0000000000209743
ISSN: 0028-3878
DDC Classifikation: 610 - Medicine and health
Dokumentart: Article
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