Browsing Universitätsbibliographie by Author "Reinhard, Carola"

Now showing items 1-13 of 13

A guide to writing systematic reviews of rare disease treatments to generate FAIR-compliant datasets: building a Treatabolome

Atalaia, Antonio; Thompson, Rachel; Corvo, Alberto; Carmody, Leigh; Piscia, Davide; Matalonga, Leslie; Macaya, Alfons; Lochmuller, Angela; Fontaine, Bertrand; Zurek, Birte; Hernandez-Ferrer, Carles; Rheinard, Carola; Gomez-Andres, David; Desaphy, Jean-Francois; Schon, Katherine; Lohmann, Katja; Jennings, Matthew J.; Synofzik, Matthis; Riess, Olaf; Ben Yaou, Rabah; Evangelista, Teresinha; Ratnaike, Thiloka; Bros-Facer, Virginie; Gumus, Gulcin; Horvath, Rita; Chinnery, Patrick; Laurie, Steven; Graessner, Holm; Robinson, Peter; Lochmuller, Hanns; Beltran, Sergi; Bonne, Gisele (2020)
Child-to-adult transition: a survey of current practices within the European Reference Network for Rare Neurological Diseases (ERN-RND)

Nanetti, Lorenzo; Kearney, Mary; Boesch, Sylvia; Stovickova, Lucie; Ortigoza-Escobar, Juan Dario; Macaya, Alfons; Gomez-Andres, David; Roze, Emmanuel; Molnar, Maria-Judit; Wolf, Nicole I.; Darling, Alejandra; Vasco, Gessica; Bertini, Enrico; Indelicato, Elisabetta; Neubauer, David; Haack, Tobias B.; Sagi, Judit C.; Danti, Federica R.; Sival, Deborah; Zanni, Ginevra; Kolk, Anneli; Boespflug-Tanguy, Odile; Schols, Ludger; van de Warrenburg, Bart; Vidailhet, Marie; Willemsen, Michel A.; Buizer, Annemieke I.; Orzes, Enrico; Ripp, Sophie; Reinhard, Carola; Moroni, Isabella; Mariotti, Caterina (2024)
Development of a patient journey map for people living with cervical dystonia

Benson, Monika; Albanese, Alberto; Bhatia, Kailash P.; Cavillon, Pascale; Cuffe, Lorraine; Koenig, Kathrin; Reinhard, Carola; Graessner, Holm (2022)
Dystonia management across Europe within ERN-RND: current state and future challenges

Centen, Liesanne M.; Pinter, David; van Egmond, Martje E.; Graessner, Holm; Kovacs, Norbert; Koy, Anne; Perez-Duenas, Belen; Reinhard, Carola; Tijssen, Marina A. J.; Boesch, Sylvia (2023)
European Academy of Neurology guidance for developing and reporting clinical practice guidelines on rare neurological diseases

Aleksovska, Katina; Kobulashvili, Teia; Costa, Joao; Zimmermann, Georg; Ritchie, Karen; Reinhard, Carola; Vignatelli, Luca; Fanciulli, Alessandra; Damian, Maxwel; Pavlakova, Lucia; Burgunder, Jean-Marc; Kopishinskaya, Svetlana; Rakusa, Martin; Kovacs, Norbert; Erdogan, Fusun Ferda; Linton, Lori Renna; Copetti, Massimiliano; Lamperti, Costanza; Servidei, Serenella; Evangelista, Theresina; Ayme, Segolene; Pareyson, Davide; Sellner, Johann; Krarup, Christian; de Visser, Marianne; van den Bergh, Peter; Toscano, Antonio; Graessner, Holm; Berger, Thomas; Bassetti, Claudio; Vidailhet, Marie; Trinka, Eugene; Deuschl, Guenther; Federico, Antonio; Leone, Maurizio A. (2022)
Impact of specialist ataxia centres on health service resource utilisation and costs across Europe: cross-sectional survey

Morris, Stephen; Vallortigara, Julie; Greenfield, Julie; Hunt, Barry; Hoffman, Deborah; Reinhard, Carola; Graessner, Holm; Federico, Antonio; Quoidbach, Vinciane; Giunti, Paola (2023)
Improving paediatric movement disorders care: Insights on rating scales utilization and clinical practice

Amato, Maria Eugenia; Darling, Alejandra; Stovickova, Lucie; Attard, Stephen; Eggink, Hendriekje; Engelen, Marc; Freilinger, Michael; Grosso, Salvatore; Hadzsiev, Kinga; Moroni, Isabella; Nardocci, Nardo; Neubauer, David; Nicita, Francesco; Pagliano, Emanuela; Siegert, Sandy; Soler, Doriette; van de Pol, Laura A.; Vasco, Gessica; Vidailhet, Marie; Willemsen, Michel A. A. P.; Zibordi, Federica; Zorzi, Giovanna; Zumrova, Alena; Reinhard, Carola; Sevin, Caroline; Wolf, Nicole; Rodriguez-Blazquez, Carmen; Sival, Deborah A.; Ortigoza-Escobar, Juan Dario (2024)
Management of rare movement disorders in Europe: outcome of surveys of the European Reference Network for Rare Neurological Diseases

Painous, C.; van Os, N. J. H.; Delamarre, A.; Michailoviene, I; Marti, M. J.; van de Warrenburg, B. P.; Meissner, W. G.; Utkus, A.; Reinhard, C.; Graessner, H.; Tijssen, M. A. J. (2020)
Patient pathways for rare diseases in Europe: ataxia as an example

Vallortigara, Julie; Greenfield, Julie; Hunt, Barry; Hoffman, Deborah; Reinhard, Carola; Graessner, Holm; Federico, Antonio; Quoidbach, Vinciane; Morris, Steve; Giunti, Paola (2023)
Recommendations for optimal interdisciplinary management and healthcare settings for patients with rare neurological diseases

Graessner, Holm; Reinhard, Carola; Baeumer, Tobias; Baumgaertner, Annette; Brockmann, Knut; Brueggemann, Norbert; Bueltmann, Eva; Erdmann, Jeanette; Heise, Kirstin; Hoeglinger, Guenter; Huening, Irina; Kaiser, Frank J.; Klein, Christine; Klopstock, Thomas; Kraegeloh-Mann, Ingeborg; Kraemer, Markus; Luedtke, Kerstin; Muecke, Martin; Musacchio, Thomas; Nadke, Andreas; Osmanovic, Alma; Ritter, Gabriele; Roese, Katharina; Schippers, Christopher; Schoels, Ludger; Schuele, Rebecca; Schulz, Jorg B.; Spross, Joachim; Stasch, Eveline; Wunderlich, Gilbert; Muenchau, Alexander (2024)
Research priorities for rare neurological diseases: a representative view of patient representatives and healthcare professionals from the European Reference Network for Rare Neurological Diseases

Post, Annemarie E. M.; Klockgether, Thomas; Landwehrmeyer, G. Bernhard; Pandolfo, Massimo; Arnesen, Astri; Reinhard, Carola; Graessner, Holm (2021)
The European Reference Network for Rare Neurological Diseases

Reinhard, Carola; Bachoud-Levi, Anne-Catherine; Baeumer, Tobias; Bertini, Enrico; Brunelle, Alicia; Buizer, Annemieke I.; Federico, Antonio; Gasser, Thomas; Groeschel, Samuel; Hermanns, Sanja; Klockgether, Thomas; Kraegeloh-Mann, Ingeborg; Landwehrmeyer, G. Bernhard; Leber, Isabelle; Macaya, Alfons; Mariotti, Caterina; Meissner, Wassilios G.; Molnar, Maria Judit; Nonnekes, Jorik; Ortigoza Escobar, Juan Dario; Perez Duenas, Belen; Renna Linton, Lori; Schoels, Ludger; Schuele, Rebecca; Tijssen, Marina A. J.; Vandenberghe, Rik; Volkmer, Anna; Wolf, Nicole I.; Graessner, Holm (2021)
The Growing Role of Telerehabilitation and Teleassessment in the Management of Movement Disorders in Rare Neurological Diseases: A Scoping Review

Lavorgna, Luigi; Maida, Elisabetta; Reinhard, Carola; Cras, Patrick; Reetz, Kathrin; Molnar, Maria Judit; Nonnekes, Jorik; Medijainen, Kadri; Summa, Susanna; Diserens, Karin; Petrarca, Maurizio; Albanese, Alberto; Leocani, Letizia; Delussi, Marianna; Vinciguerra, Claudia; Pagliano, Emanuela; Kubica, Jadwiga; Lallemant, Pauline; Wenning, Gregor; Sival, Deborah; Groleger Srsen, Katja; Bertini, Enrico Silvio; Lopane, Giovanna; Boesch, Sylvia; Bonavita, Simona; Crosiers, David; Muresanu, Dafin; Timmann, Dagmar; Federico, Antonio (2024)

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